Catie's Story

 
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Welcome to Catie's Story

Mary Catherine O'Brien (Catie) was born on April 23, 2001 and was first diagnosed with a spinal tumor on June 17, 2008.

Catie had surgery to remove a 6cm tumor on June 19, 2008. The tumor was an extremely rare form of cancer called an ATRT (Atypical Teratoid Rabdoid Tumor).

Catie was treated with radiation to the entire brain-spinal column and aggressive chemotherapy and stem-cell recovery at St. Jude Children's Hospital in Memphis, Tennessee.  Treatment was suspended on November 25th as the tumor had not responded.  Catie remained at St. Jude until the second week of December and was then reunited with her four sisters, Maggie (10), Mia (6), Molly (4) and M.E. (2), and her brother, Max (9) at home in Mechanicsburg, PA.

Catie's parents, Christine and Kevin offer this on-going story as a prayer not only for Catie, but for all those who join her on this journey of faith and triumph.

Catie was called home to eternal life on January 25th, 2009.  She will always be a part of our lives.

Catie's journey continues on in her Legacy wish.  Catie desired to have us raise enough funds each year to cover the entire operating expenses of St. Jude Children's Research Hospital on her birthday April 23rd.  This year on what would have been her 8th birthday, we were able to fulfill and exceed that wish for the first time.  Please join with us in prayer that our efforts will make her Legacy an on-going reality.

 

 

 

A Sign

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We have had a spiritually rich year and a humanly difficult year.

 

Our memories of our visit to Lourdes will remain a highlight of our lives.  One of the things holding a crystal clear memory was the weather.  It was glorious and sunny each day that we were there but extremely cold.  Knowing the story of Saint Bernadette and the Grotto the weather was most fitting.  As it was winter when Bernadette herself was led by Our Blessed Mother to uncover the miraculous spring contained at Lourdes.  The night after the Baths we were going to walk in Procession to Mary - as she has requested.  As we returned from the Baths we gathered the children together to speak of the experience.  They remained hope filled that Catie’s healing would still be granted miraculously and still they each in their own way continued to pray.  Catie cried and as we began to cry the rain began to fall.  That night we processed in pouring rain - as though heaven was weeping for the pain along with us.

 

Yesterday as we prepared to celebrate the first anniversary of Catie’ eternal life the rain began.  We attended Mass for Catie and the rain poured and Mechanicsburg temporarily flooded.  Thus reminding us all of Lourdes and of heaven weeping for us and pouring cleansing waters upon us to renew us.  The day ended with bright and beautiful sunshine and another glorious sunset.  As though Catie herself was joining heaven and telling us the time for tears was over for now and to find strength in one another.

 

This morning my body was numb.  The sadness that was experienced yesterday was weighing on me physically.  Any excuse would work to keep me from Mass.  M.E. woke up after having slept through the night for the first time in five nights.  Her first words were “are we late for church?” and off we went.  Still feeling numb and yet knowing how much comfort prayer has brought me throughout this entire journey my prayers began.  Never having left a Mass disappointed or unfed by Our Lord; today was no exception.  The Gospel was Luke 10:1-9

After this the Lord appointed seventy[-two] others whom he sent ahead of him in pairs to every town and place he intended to visit.  He said to them, “The harvest is abundant but the laborers are few; so ask the master of the harvest to send out laborers for his harvest.  Go on your way; behold, I am sending you like lambs among wolves.  Carry no money bag, no sack, no sandals; and greet no one along the way.  Into whatever house you enter, first say, ‘Peace to this household.’ If a peaceful person lives there, your peace will rest on him; but if not, it will return to you.  Stay in the same house and eat and drink what is offered to you, for the laborer deserves his payment.  Do not move about from one house to another.  Whatever town you enter and they welcome you, eat what is set before you, cure the sick in it and say to them, ‘The kingdom of God is at hand for you.’  Whatever town you enter and they do not receive you, go out into the streets and say, ‘The dust of your town that clings to our feet, even that we shake off against you.” Yet know this: the kingdom of God is at hand.  I tell you, it will be more tolerable for Sodom on that day then for that town.

 

It was a sign that we are headed in the right direction; that we are doing all that we should be doing to honor Catie’s memory, love and serve the Lord and be there for one another both as a family and as members of the community.  Realizing that many of us search for meaning and signs that we are going in the right direction – just think about traveling to a new place whether you use a map or GPS, there are moments when you search for a clue or sign along the way that you are headed in the right direction – when do you really know?  When you arrive at your destination on time is when you really know.  What happens if the only place you really are interested in going is heaven? 

 

You search for signs in the prayer and in the readings and for me often the question arises “Am I doing what God wants me to do with my life?” for if I am that is a good sign.  Each day treating others with compassion, honesty, kindness and understanding is loving and serving the Lord.  God asks all of us to follow Him.  Then Jesus breaks it all down into two great Commandments: love your God with all of your heart, mind and soul and your neighbor as yourself.  Each day one simple way to say thank you Lord for the gift of this day is by doing your best to know and love your neighbor.

 

Since Catie’s illness pediatric cancer awareness has become our neighbor along with all the children who come to us each morning telling us their stories on CaringBridge and asking for our prayers.  These children and their struggles with pediatric cancer have been brought into our lives like the Haitian earthquake has been brought into yours.  There are many in need.  There will be many more in need tomorrow if we don’t do all we can today to help them – through prayer and through efforts to raise this year’s $1.4 million we can make a difference.  We still have a ways to go in the next three months. Please continue to pray for us.

 

We humbly thank you for joining us and ask that you continue journeying with us all the way to a cure.

 

God is good all the time,

Kevin, Christine, Maggie, Max, Mia, Molly, M.E. and always Catie

 

PS Please pray for all those who have asked for our prayers.  The complete list is now being compiled for the new website.

 

A Year Gone By

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We continue to prepare to celebrate our first year without Catie in our lives.  It doesn’t even sound right – how can anyone celebrate a year without someone, unless it was someone they didn’t love and want in their lives; but then why celebrate that? The what, how and whys of this celebration only seem to make sense to me when we look at the - WHO we are celebrating.  We are celebrating Catie.  What are we celebrating?  In a small way, we are celebrating that we have not only survived but in many ways thrived throughout this past year. 

There were so many days immediately after Catie’s death that joining her in death seemed like a good idea but not for the right reasons.  God has a plan for each of our lives and only He decides when it is time.  Until He decides our time is up, it is up to us to live our lives to the fullest and for Him.  We each hold our own personal memories of Catie; something we did with just her.  Many nights either Mia or Maggie shared a room with Catie.  What did they talk about before they went to sleep; they each hold those memories in their hearts.  Catie and Max often played together outside riding their bikes or jumping with their scooters.  Each child had one week of their own with Catie down at St. Jude and those are special memories and there are special photos for each of them.  We remember the little moments with Catie – her birth and the seven birthdays that we were blessed to celebrate, listening to her voice as she sang wherever she was, witnessing Catie learn and teach her younger sisters what she had learned and  being privileged to hear her prayers for those she loved. 

With all of these wonderful memories of Catie we miss her and long to be with her but that is only part of Catie’s story.  The other part of Catie’s story was the pain and the waiting in the hospital, watching Catie finally sleep again after days and nights of pain, seeing her strength, listening to the change in her prayers as she asked God to heal her and bring her home (we never asked but always assumed that she meant to our home, but will never know) and knowing how much she protected us from because she loved us.  In death Catie was healed of all of this.  Catie can now walk; Catie can now see; what a vision Heaven must be!  Catie can sing with all the angels – they better know the words.  Almost one year later we know that Catie is with us all still.  We have felt her presence.  We have heard how so many of your prayers to her have been answered – thank you for sharing them with us and taking them to her.  Has it been easy? No. Is it over? It isn’t meant to end because Catie has reached Heaven and she lives on with God forever in eternity.   So where are we?

As a couple we are reunited.  We have been renewed and strengthened.  Ask either of us and we both would say that we are more in love and love the other more now than we ever thought possible.  We both have tremendous respect for what the other was able to do to hold their part of our family together during the six months apart.  We have grown spiritually closer to God as a couple and thank Him for the blessing and gift of the other and our marriage.  That is not to say that we do not fight or continue to grieve – we do.  We are not perfect yet.

As a family was are all back under one roof.  We have been tested and we all realize that this model works best for us – all of us and each of us.  We spend more time doing things all together.  We spend more time hugging and holding each other.  We spend more time telling each other that we love each other.  We also spend more time praying for one another.  We still are not perfect.  The kids still do the crazy things that kids do that drive us crazy as parents.  We do our best to love them, guide them, forgive them and move on and each day still has its challenges.  Here we are not perfect either but we as a family remain prayerful.

The Fab 5 are well.  They all did well in school and that is always a comfort to parents.  They each have struggled and communicated what they have felt and continue to do so openly.  In the past few days both of the younger girls have been playing on their own and with their dolls.  They discuss cancer, tumors, wheelchairs, death and what happens after death.  They each have concluded that while God is there and has a plan – something we are certain they have heard us say – “He keeps it a secret so it must be a REALLY GOOD plan.” The awesome faith of a child!!!

We will be attending Mass at St. Columbkill in Boyertown, PA on Sunday, January24th at 10:30am and then we as a family will drive to Calvary Cemetery and visit Catie’s grave.  The kids want to bring something purple.  So we will be bringing purple flower petals and Holy Water.  On Monday we will be attending Mass for Catie at 9am at St. Joseph’s in Mechanicsburg, PA.  There is no book on how to handle this day, no guide, no right or wrong and yet it is a day when in many ways our lives changed forever and our faith and belief in God was tested.  What we are celebrating is that this beautiful child was given to us – not just our family – but all of us and after seven short years we witnessed her death.  We still long to hold her; to have a physical connection with her and yet it is only through our faith in Christ’s Resurrection that Catie exists outside of our memories.

Today at Mass, Father Brommer spoke about the Ark of the Covenant – what it contained, why it was important and where it was located.  Never knowing what it contained it was an interesting homily.  The ARK contained the original Ten Commandments (2 stone tablets), Aaron’s staff and manna.  Until Christ came it held the only tangible gifts from the hand of God to His people.  Now through the life, death and resurrection of Christ we no longer need to hold on to the Ark; as Christ gives us His body and blood every day at every Mass that is celebrated.  If we hold in our beliefs that Christ conquered death in His Resurrection then through our baptism and life in Christ we too do not die but live on in eternity with God. 

What then shall we say?  Shall we persist in sin that grace may abound? Of course not!  How can we who died to sin yet live in it?  Or are you unaware that we who were baptized into Jesus Christ were baptized into his death?  We were indeed buried with him through baptism into death, so that, just as Christ was raised from the dead by the glory of the Father, we too might live in newness of life.

For if we have grown into union with him through a death like his, we shall also be united with him in the resurrection.  We know that our old self was crucified with him, so that our sinful body might be done away with, that we might no longer be in slavery to sin.  For a dead person has been absolved from sin.  If, then, we have died with Christ, we believe that we shall also live with him.   We know that Christ, raised from the dead, dies no more; death no longer has power over him.  As to his death, he died to sin once and for all; as to his life, he lives for God.  Consequently, you too must think yourselves as [being] dead to sin and living for God in Christ Jesus.

(Roman 6: 1-11)

 

How can you join us?  Join us for either of the Masses or join us in prayer from wherever you are.  Pray for all those who do not have the support that you provide us with each day.  Pray for the children that Catie’s wished to take care of; those fighting for their lives at St. Jude and other Children Hospitals around the world.  Pray for the families who have lost a child and are still actively grieving that they may find comfort.  Pray for the doctors, nurses, staff and researchers who sacrifice so much of their lives to care for critically ill children.  Pray for yourself and your family that you remain faithful to God and His divine will for your lives.

God is good all the time,

Christine, Kevin, Maggie, Max, Mia, Molly, M.E., and always Catie

PS -  Please continue to pray for all of our dear friends from St. Jude - the doctors, nurses and staff that support the patients and families.  Please pray for all who have asked for our prayers and please add to your prayers Baby Amelia, Baby Coco, Connor, Parker, and Oliver, all who are new to our prayer list and in need of our prayers. 

 

 

Light Shows

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Just a quick update to let you know that if you are in the area and have not yet seen the area light shows benefiting Catie’s Wish and St. Jude that you still have this weekend to check them out. They are spectacular! We drove around to the Krasleys’ and the Narel’s tonight and are planning on going to visit the Boucher’s tomorrow night, and of course, we started it all with the Duszak’s and their wonderfully inspiring show. We had a chance to meet the people responsible for the shows at the Krasley’s and Narel’s and spent some time with them thanking them and talking about Catie. It is well worth the drive!

The link to the website is http://duszakfamilylights.com/tour_of_lights.html and the directions are on the site.

Here are the addresses for the 4 shows:

Duszak Family Light Show

205 east Clearview Drive, Camp Hill, PA

Krasley’s Country Christmas

525 Woodland Drive, Manheim, PA

Narel Family Lights

1300 King Arthur Drive, Mechanicsburg, PA

Boucher Lights

35 Dakota Drive, Hanover, PA

Thank you to each of the families who set up the show and the tour and a special thanks to Ron and Jolene Duszak for the impetus to start the tour. What a fitting tribute to Catie and to Ron’s mom!

God is good, all the time.

Christine, Kevin, Maggie, Max, Mia, Molly, M.E. and always Catie

PS – please pray for the kids still battling and for Mia and her classmates as they receive the Sacrament of Reconciliation for the first time Saturday morning.

Some really good news, thanks to your prayers, Jack and Mikey received test results from their scans showing great improvements !

 
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Help fulfill Catie's wish for St. Jude to be funded each year on her birthday in her name.

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Catie’s Wish Foundation
P.O. Box 261
Mechanicsburg, PA 17055

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