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Recent updates | Catie's Story

Catie's Story

 
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Recent updates

An Unplanned Road

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Good evening dear friends

This is a road I never saw myself traveling.  Yet, here I am.  When Catie first came out of surgery I was shocked and grief-stricken at the shape she was in, completely physically dependent on us.  Four days later that was gone and she was as independent as before surgery.  Now we are 1/3 of the way through radiation.  Looking back on her first day of treatment, seeing her getting sick and her not knowing what to do - seems like a lifetime ago.  In reality only ten days have passed.  With time you gain perspective, peace and understanding.

The key is trusting in God.  Focusing on God and not the situation or the moment of "how am I going to deal with this?" is the key.   While I want to rush forward to the moment when all of this is over, I need the perspective that I will receive as I experience all of this.  I also want my sweet girl to know that I am going to be there for her and that I love her.  I want the cards to keep coming everyday so I can say to her this many people love you and are praying for you.  Even though I don't want to open all of the packages and figure out what to do with everything I have to realize that to a 7 year old "everything" represents love.  I don't want to take that from Catie even for a minute.

So if you want to send something would you mind running it past Kevin or I first?  Catie does make suggestions sometimes.  She mostly asks for her brother and sisters (who don’t Fedex real well) but if I listen closely every once in a while there is something else.

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Hope and Courage

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Good evening to all,

Tonight we begin with a message from Christine’s sister KC:

Hope is not the same as wishful thinking, hope is ASSURANCE in GOD's PROMISE. HOPE is confidence beyond reason and circumstances because our confidence lies in Christ! Hope is not PRAYING THAT HE CAN; it's KNOWING that HE WILL! Hope is remembering God's promise and faithfulness in all circumstances. Hope is trusting in God's promise. We say often that God is the same yesterday, today, forever; but how many of us live in that truth. Recognizing that just as God was faithful to the Israelites in delivering them, he will deliver us as well. In Isaiah 40:31-35 it talks about the Strength of the Lord, "You never grow weak or weary, no one can measure the depths of Your understanding."

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While we are apart, we are a part

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Good evening dear friends,

It is hard to believe that 2 months ago we had just come back from Washington DC and our annual pilgrimage to the nation’s capital and our biggest care in the world is that we had “lost” Molly for 10 excruciating minutes in front of the Lincoln Memorial. What we could not imagine then was that the tumor that would soon turn life upside down was already growing rapidly in Catie’s spinal column and would soon begin causing her pain. Our lives can change in an instant, in 2 short months, or gradually over time. This life change is a tricky one. As we sit down each evening to share with you our update and prayer for the day, we think back over the past 24 hours and try to put into words our most intimate thoughts and feelings as we watch Catie live the journey she has been called to live. It is a humbling experience, and we truly believe that God and Catie are writing the story, but Catie has not learned to type yet.

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What is "OK"?

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Hello from Memphis!

This morning I woke up to the sound of Catie sobbing in her sleep. At first I was unsure what was happening, I sat up in bed (we are sharing a bed because Helen and Sean are sleeping in the other bedroom) and looked at Catie. Visually she is peacefully sleeping. The sobbing stopped as soon as I reached out and touched her arm. Shh, it is OK Catie everything is just fine, I told her. Well, now I'm up. I grab my rosary beads (thank you Mrs. Jordan) and go and take a shower. Then I start to think, is everything OK?

Yes it is, we will get back to that point, and no it isn't, let me start here. No everything is not OK. Things aren't even close to being OK. What do we need to fix or make things OK? A miracle. Well, first let's consider what is "OK"? Kevin knows I've never been striving for OK. Think about expectation levels; is OK even one of them? Yet when someone is upset, stressed, or crying (especially when someone is crying) people offer them the comforting words of everything is OK or will be OK. Are you kidding me or just yourself? Those are words of comfort?? We need to put a little more thought into our word choice - you have a serious form of cancer, you;re upset and to comfort you I say it is OK. Wouldn't it be better, more honest, hopefully more accurate to say I am here for you, allow me to share this with you, or to just hold/touch the sobbing person and physically let your touch be the comfort?

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