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Recent updates

Mia and the Holy Spirit

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Good evening Catie followers,

 

Mia came into our room in the middle of the night last night.  She was crying and told us that she had a bad dream.  Being the typically exhausted parents that we are, Kevin hugged her and offered her the loveseat as a place to sleep the rest of the night.  This allowed him to stay in bed and sleep.  I really don’t sleep as well if there is a kid sleeping in our room, so I was awake and reading at 6am.  I am reading a book called Notes Left Behind.  It is the story of another St. Jude family whose daughter died of brain cancer – a different type than Catie had.  While the first page of the book had me crying hysterically yesterday and Kevin thought that by 11am the day was lost, the remaining pages were not as emotional.

I sat in our bed; if I move or get out of bed Kevin wakes and I wanted him to be able to sleep.  So I just sat there and read until Mia stirred.  Mia sat up and we asked her how she was.  She began to tell us at once about this “bad dream”.  It was about Catie.  Not being able to analyze dreams I just listened.  Then Mia said something that has continued to echo in my mind to this moment.  She said “Catie was alive and now we can live the life that we wanted.”  Talk about tears.  That statement is absolutely true.  If Catie had lived we would be living the life that we wanted to live.  Does that mean that we aren’t living a life that we want to now?

Mia came over to us and we soon realized that she was running a fever.  So this Sunday, Pentecost Sunday, we had to divide and conquer.  I went to 8am Mass alone.  Kevin stayed in bed and went later with Max and Maggie.  Sitting in Mass alone I prayed and prayed.  I still wonder why – but won’t really ask God the question.  I am supposed to trust.  Was I not trusting or including God when Kevin and I began to build this life that we wanted and were living?  Am I now going to view my life and the life that I am living without Catie - sitting at the table, sleeping in her bed, putting on her backpack and going to school, riding her bicycle – as the life that God wants me to live?  We are living it so I guess I have my answer.  What does it say about my faith and level of trust if I want or would be happier living with Catie.  Doesn’t my faith tell me that Catie is in heaven and therefore I can still live my life with her?  It does! 

So what is so difficult?  The human being part is the difficult part.  The “not fully understanding the mystery of death being conquered by Jesus Christ” and yet that is the foundation of Christianity.  Living life is the tough part; for it is in being human where we are all faced with our challenges.  When Kevin and I were first married we met a priest, Father Dennis Berry a Trinitarian, who challenged us to become evangelists.  (We have written about our encounters with Father Dennis earlier in Catie’s Story.)  My immediate answer to Father Dennis was “no thanks I am committed in my beliefs to being a Catholic, I don’t want to change faiths and become an Evangelist.”  Kevin; knowing exactly what Father Dennis was asking of us, just smiled at his crazy new wife.

Now that is exactly what Kevin and I have become through Catie’s Story – evangelists.  As we write Catie’s Story and begin the work to form the Catie’s Wish Foundation, we are essentially sharing the only way we have dealt with all that life has thrown at us this past year – the grace of God.  Pentecost is the coming of the Holy Spirit to the apostles.  Our listening to and following Jesus Christ is living out Pentecost and helping us to find the strength and understanding to live; not the life we wanted, but the life we were created by God to live.  Evangelizing is not a job for a few.  Jesus Christ needed help and so do we.

We thank all of you who have shared Catie’s Story.  We thank all of you who have written to us and prayed for us.  Your efforts have been the grace of God which has sustained us and continues to help us live the life that God wants us to live.  A life where we all share Catie each and every day and live the life that God wants and has planned for each of His children.

If you want to help us as we prepare the work of establishing the Catie’s Wish Foundation please contact us.  This will be a busy summer for the kids, once school is out summer offers them the opportunity to help with the work of Catie’s Wish.  It is something that they are all very excited about – not so much M.E., she is just excited about being with everyone.

As we close, please allow us to share this prayer:                        Come Holy Spirit.   

Come Holy Spirit fill the hearts of your faithful and

kindle in them the fire of your love. 

Send forth your spirit and they shall be created and

they shall renew the face of the earth.

Amen

God bless you and those you love,

Christine, Kevin, Maggie, Max, Catie, Mia, Molly, M.E. and Gianna

PS  After reading this update to Kevin and the kids we all laughed at the number of times I mentioned that Kevin was sleeping.  For all of you that know Kevin, he is never given the opportunity by me to sleep.  There are too many projects and he just doesn’t budget his time well because I am always telling him about the next project.

 

 

Remembering

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God bless you all,

 

What makes grief so different from everything else in life?  I have asked myself this question a dozen times over the past four months.  Is it because in most cases we are not ready for it to happen and there is no practice or opportunity to "do better next time"?  Not that we are asking for a next time or a second chance.   We are not prepared to say good-bye.  Catie's disease made that part a non-issue.  Catie simply drifted off to sleep and never woke up - did any of us really understand that there was never going to be another moment to say "I love you"?  There was no second chance to tell our child we loved her or ask her any questions once she was dead.  So what are we to do?  Focus on the living.  Make sure that each and every day we use wisely the opportunity to put everything else aside and tell your spouse, your kids, your parents, your family and your friends that you love them.  If you think that you will get another chance, that it can wait, then you will have missed today’s chance.  Remember that Catie’s first wish was that we all take that extra opportunity each day to tell the people we love how important they are in our lives.

 

Most of us are planners to one degree or another.  We plan our vacations, we plan our meals, we plan for our family, we plan tomorrow’s schedule and some of us plan for our future – including our own death.  I can remember telling Kevin when Max was born that I thought we should get some life insurance for the kids.  At this time Maggie was one and Max was a newborn, Kevin thought that I was crazy, morbid and that all the years living with my father (who sold insurance for a living) had totally brainwashed me into thinking that as long as one had enough insurance one was ready for anything.  Kevin’s final word was no (for any of you who know us Kevin doesn’t usually get the final word).  We would plan for our children’s futures but not for their death.  We simply didn’t want that to happen.  So if we didn’t plan for it, it wouldn’t happen.  Right?  Wrong.  You just never know.

 

Knowing and planning for death is so awful and impossible and that is why I am so very thankful that I am a Catholic Christian.  Thanks to Jesus Christ who has conquered death and my firm belief in Christ’s resurrection I am able to believe that my relationship with Catie is capable of continuing.  It is not over.  It is not finished.  It is there for me to draw strength from each and every day.

 

Do I need to believe this?  Yes, but that doesn’t mean that I didn’t believe it before Catie became ill.  I just understand it better now, because now I live it.  Each morning I wake with the sun and pray and after I am finished praying to God my Father I turn my prayers to Catie.  I tell her all about my concerns for the kids at St. Jude and her brother, Max, and her sisters, Maggie, Mia, Molly and M.E. and her father, Kevin.  I tell her about the other prayer intentions that have become known to me through her website.  I tell her about my day and about my struggles.  I tell her that I love her.  I tell her that I miss her.  I pray with her, just like we did in Memphis, for my relationship with Kevin.  I pray that I will never get too busy again to miss a chance that a day offers me to do something special or loving for another person.  I pray with Catie that I will always appreciate how special and rare life and love are – they are gifts.  These are gifts that we hoard, like the things that fill our garages, or gifts that we share..   It is all up to each of us. 

 

Throughout the journey that we have been on for the last year – today is the anniversary of Catie’s first night of hip pain – that is the main message that I have learned.  Love is a gift that grows best when shared.  For all of the gardeners – love is a perennial.  There should be a little of its beauty in all of our lives.  This Friday we all worked together in the perennial beds around our house.  We planted a new rose bush for Mary.  I love to work outside.  I love that everyone else that is working with me does so because they love me.

 

Saturday we woke up early and began our annual trip to Washington D.C.  This year we stopped on the way at the Grotto in Emmitsburg, MD.  The last time we were there Catie was so healthy and vibrant.  This time she was just missing.  Her absence brought Kevin to tears.  We made great time and as usual found a wonderful parking spot on the Mall in front of the Air and Space museum.  Catie’s shadow was everywhere we went.  Again this brought Kevin to tears.  I took pictures of the kids but most pictures were taken from behind them – capturing their sizes and not their smiles – in some sense freezing them.  I don’t want them to keep growing up. It is just another reminder that Catie is not joining them or us.  Each year we add another new site to the trip.   This year’s addition was Mass at the Basicilla of the National Shrine of the Immaculate Conception.  Kevin and I had been there years before with just Maggie and Max as babies.  Sunday and Monday were quiet days spent with family friends – enjoying and reflecting, tearing up and brushing the tears away, while we miss Catie we will always remember her and that is what we celebrate not just this Memorial Day weekend but every day.

 

Jesus taught us in His own life and death that it is how we live that matters.  It is in how we remember the life of another that also matters.  To call yourself a Christian means that you remember the life of Christ and wish to follow Christ’s example in your life.  To call yourself a Catholic Christian means that and also means following that example through the observation of the sacrament of the Holy Eucharist.  Several of you have returned to the sacraments or grown stronger in your faith and prayer life after journeying with Catie.  Praise the Lord!  I refer to you as Catie Catholics.  I think there is a nice ring to the name.  It will probably not catch on and I would never publicly name any of you by name, but there is something to all of this.  Catie only was given seven years to make a difference.  She did to us.  She did to you.  She didn’t think that her wish was too big or impossible to achieve – neither did Martin Luther King or many others who went before Catie.  Dream, wish and pray for the strength to make your dreams come true.  Remember the motto of Catie’s Wish – The only limit to God’s ability to work in your life is your level of trust!!!  Who deserves our trust more than God?

 

So I offer you this:  DREAM; PRAY; TRUST: SHARE; and LIVE.  Great things are bound to happen.  What do I think is next?  I can only imagine…

 

Peace be with all of you,

 

Christine, Kevin, Maggie, Max, Mia, Molly and M.E.

 

 

My Prayer for You

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Blessings to all,

As I begin this update I pray that that words that are written here will provide comfort, if comfort is what you are seeking; encouragement, if encouragement is what you are needing; peace, if peace has been missing in your heart and home; joy, if the blessing of being alive today has not yet offered you a reason to be joyful; and hope, that God loves you and hears all of your prayers!  All of that may be a tall order so now I will sit back and see what the Holy Spirit has to say. 

On Wednesday, May 13th Kevin, Maggie, Max and I attended Mass at St. Francis of Assisi Church in Springfield, PA.  The Winter Family, members of this parish, invited us to join their Elizabeth Ministry for the annual Mass of Remembrance.  (The Winter family came into our lives through the Malvern Family Retreat – what a blessing both are to us!)  I felt very strongly about attending the Mass for Suzanne and the members of St. Francis.  I was a member of this parish and was baptized in this church, even attended first grade at St. Francis.  This community and the Winter family have been extremely supportive throughout Catie’s Story – selling handmade bracelets, having a dress down day, praying for Catie and our family throughout the year. 

After a three hour drive, we arrived and were greeted by Suzanne and her daughters in the parking lot.  Suzanne was holding a piece of poster board that she had turned into a collage of Catie.  It was so beautiful.   Sitting in church before Mass I simply sat and breathed in the presence of God – no prayers or requests for this or that – just being still and enjoying the peace-filled feeling that came over me.  The Mass began with all family members coming up to the altar where they placed pictures of their child and any mementos on the altar steps with a candle.  We placed the collage of Catie and the purple memory box, which holds Catie’s crocs and cell phone, Bible and relic collection.  The altar was glowing. 

There was one family that caught my eye.  A father walked up carrying one small child (under 2) and holding the hand of another child (maybe 3).  There are so many families in the same position we are in – we are not alone in our grief.  We are so very blessed.  Not only do all of you help us and through your prayers lift our burdens, but others walk through life knowing their child is in heaven too.  This is something we share.  Like our faith we are all on a journey with our understanding of how our child’s death affects us, our spouse, our other children and others.  We are left with “what do we do now?”  We grieve.  At this Mass we were able to grieve with others. 

The Mass ended with a song “Winged One” written by Jean Coppa Milani and the second to last line hit me and has stayed with me.  It contains these words, “I could never give you what you have now.”  How very true that is!!  Catie has everything now and there is no more that she needs.  So I have to let go and focus on my life and living it and help others.  After Mass the three musicians were still there packing up their equipment and instruments.  We began to speak with them and realized that God may have had another reason for us to be at this Mass. 

After meeting the musician we were made aware of little girl named Mary who needs your prayers and Catie’s intercession.  Mary Coffey is the daughter of Felicia Coppa Coffey, one of the musicians.   Mary is being treated at du Pont in Delaware for a heart condition.  Mary’s condition sounded very similar to the condition that Jake was born with years ago.  (It was while reading the e-mail from Jake’s mom that Catie announced that she wanted to be the Patron Saint of Pediatric Illnesses.)  I began to tell Felicia about Catie.   When Felicia heard the words of Catie’s Story and of Catie’s desire to be a Saint her eyes registered hope to me.  That is what our lives should be offering others – what they need at that moment.  In the case of a parent with a sick child hope is needed.  During the drive home Kevin and the kids all told me they were all glad we had had been there.  Now we all have to pray and have hope for both Mary and for Catie’s intercession.

Thursday offered another challenge.  The school Mass was offered for Catie and all of her classmates wore their First Communion attire for their class photo.  Catie was not with them.  Before Mass ended and the photo was taken; the children all beautifully sang “My Father’s House.” Several second grade mothers came up to me and hugged me or rubbed my back.  I smiled and stepped away.  I wanted to collapse on the floor and scream “YOUR CHILDREN ARE SINGING WHILE MINE IS DEAD!”  The pouring rain prevented a quick escape.  Once home I just wanted to crawl into bed, instead I made tea for Molly and M.E.   In their world everything is better when you are having a real tea party.  Then I made a few calls looking for someone to comfort me.  Most of the calls I made reached answering machines and not people – what a great morning to be out for them.  Finally I called my dear friend from St. Jude.  Berit answered, listened and cried with me.  At no point during our conversation did she tell me I was going to be OK – we both know that in another moment I will be, but right now I wasn’t.  Berit’s daughter is alive, how could Berit understand?  Once a St. Jude patient Dr. Gajjar will tell you, you are always a St. Jude patient.  The same is true for being a St. Jude parent.

Does that help?  No and yes.  Berit and other St. Jude parents understand the pain of seeing your child suffer.  They and other parents who have buried their child understand without needing an explanation.  They understand that being there is sometimes all you need to do or can do.  No one can take away anyone’s tears, pain and grief – prayer is an amazing help that anyone can offer at anytime, but because we are human we need more.  I have found that the other biggest help – bigger than dinner for the Fab 5 – is being present to listen, share and sometimes not say anything.  Being there – witnessing the life and pain of another and not trying to stop or prevent it is all a part of life.  It is part of the life that Jesus experienced too.

When Mary came to where Jesus was and saw him, she fell at his feet and said to him, “Lord, if you had been here, my brother would not have died.”  When Jesus saw her weeping and the Jews who had come with her weeping, he became perturbed and deeply troubled, and said, “Where have you laid him?”  They said to him, “Sir, come and see.”  And Jesus wept.   So the Jews said, “See how he loved him.”  (John 11:32-36)

Here Jesus experienced and witnessed the pain of Mary the sister of Lazarus after the death of Lazarus.   Jesus was there and willing to share their pain – even to the point of His own weeping.   Mary believed that if Jesus had been with them He could have prevented their pain and suffering – Lazarus’ death.  I prayed with all of you for the miracle of Catie’s healing – this was not God’s will.  I have struggled with this for months now.  Today, however, it seems clearer to me, not really much easier just clearer.  The reason that Lazarus was brought back to life was so that others would believe. 

So then Jesus said to them clearly, “Lazarus has died.”  And I am glad for you that I was not there, that you may believe.  Let us go to him.” (John 11:14-15)

I believe was all of my heart that perhaps that is why Catie was not healed – so that others would come to believe..  That is in part why we are still writing, to share with you all that has happened as part of Catie’s Wish and to continue to share our part of Catie’s Story.  As of Friday the new total for donations to St. Jude on behalf of Catie’s Wish is $2,589,135.  That is 185% of the goal!!! 

More donations are coming in each and every day.  Last week we received a letter from Mary Circle, Stewartsville, NJ, where we lived for the first three years of Catie’s life.  The entire cul-de-sac wrote to us and collected $240 for Catie’s Wish.  The model store for Rite Aid had a bake sale raising hundreds of dollars for Catie’s Wish.  Several St. Joseph’s students, Christopher and Maria Carroll, Matthew Nguyen, Matthew Sanford, Matthew Jones, Aaron Coleman, Dominik and Patrick Nitecki, Jared Scott, Tony Starvaggi, Kayla Casey, Brynne O’Connor, Maddie Jones and Hallie Miller, raised $70.13 selling lemonade for Catie’s Wish.    Franchetta's uncle rode in a cycling event to raise money for Catie.  Praise the Lord the list of events for Catie's Wish goes on and on.  These are just a few of the amazing things that wonderfully generous and loving people who have been touched by Catie’s life and Wish have done.  There is a little boy in Mia’s first grade class who gives her his snack money twice a week $1.50 for Catie’s Wish.  It is all so very beautiful and there is so much more to do.

The accountant is in the process of getting the Catie’s Wish Foundation its 501(c)3 status as a non-profit foundation.  We have initialized a contest for a logo for the foundation.  We are meeting with a PR firm next week to establish a plan for reaching a larger audience.  We are making plans for a new website for the Catie’s Wish Foundation.  We have been contacted by folks in IL, CA, VA, MD, CT about spreading Catie’s Wish through Catholic Schools there.  We are also working on a plan for other schools that are both private and public to raise money.  We are planning on putting Catie’s Wish on Facebook and doing a digital scrapbook of all those who have raised money for Catie’s Wish.  (So take pictures of your efforts and send them to us – for now at www.catiesstory.com.)  The father of one of Catie’s classmates is planning on running in the Marine Corp Marathon on behalf of Catie.  It is all good and makes us beam with pride.  I would still rather have Catie here with me to hug and love but I trust God and know that this is His plan for all of us.  We will keep you all posted on all of new aspects of Catie’s Wish as they are finalized.

In the meantime we need prayers:  prayers that God blesses the work of our hands; prayers for the kids at St. Jude, especially Trevor who would love to be well enough to celebrate the wedding of his kin (remember that Trevor is from the South); prayers for Ian, a baby in MI who has brain cancer; prayers for Mary Coffey in DE; prayers for Alyssa who was just diagnosed and prayers for Kevin (a friend of a friend) who also was just diagnosed.   Each and every day so many need so many prayers.   Today my prayer for you is that you have more people to pray for and less to pray about for yourself.

I love you Catie!  Say hello to everyone and keep an eye on us we are doing our best to make you proud!

Trusting in His plan always,

Christine, Kevin, Maggie, Max, Mia, Molly and M.E.

 

Thanksgiving in May

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"I have no idea where I am going. I do not see the road ahead of me. I cannot know for certain where it will end. Nor do I really know myself, and the fact that I think that I am following your will, does not mean that I am actually doing so. But I believe that the desire to please you does in fact please you. And I hope that I will never do anything apart from that desire. And I know that if I do this, you will lead me by the right road, though I may know nothing about it. Therefore I will trust you always, though I may seem to be lost, and in the shadow of death. I will not fear, for you are ever with me, and you will never leave me to face my perils alone." 

                                                                                               Thomas Merton

 

A wonderful friend of ours sent this quote to me today while he was on retreat.  Merton was writing about his relationship with God, but many of the sentiments in the quote are equally applicable to our human relationships as well.  Our desire to love one another, to keep trying, to live with the promise to care for the people we love is the essence of what God wants for us and from us.  He knows that if we honestly desire to love Him and one another that we will fulfill His will for our lives.  A little seven year old taught me that lesson, perhaps she taught all of us. 

 

As we take a deep breath in the wake of the success of fulfilling Catie’s Wish for year one, (not too much of a deep breath, as Catie and her mother have that “more/better” motto), I for one need to remember the first big lesson Catie taught me last year.  I read back through the earliest emails we sent last year and listened again to St. Jude’s commercials.  The common thread of all of them is “thanks and giving”.  We have done an amazing job through the generosity and hard work of tens of thousands on the “giving” side.  Perhaps today is the day to focus again for a moment on the “thanks” side.  In Marlo Thomas’ words, “give thanks for the healthy children in your life”.  In Catie’s own words from last July, “tell everyone I love them and to hug one another”. 

 

I am blessed.  I have a benevolent Father in heaven who loves me unconditionally, a mother who said “yes” to being the vessel that delivered Jesus into the world, and a Brother who cared enough about me to take my failings and wash them away with His own blood.  I have the honor of being married to a beautiful, funny, spiritual woman who “gently” pushes me to be the very best version of myself.  I have 5 healthy, happy children who know that I love them and their mother.  I have 2 daughters in heaven sending me their blessings so that I can be the father I am called to be.  I have parents who love and accept and challenge me, sisters and brothers who helped to form me and continue to stand by me.  I have friends who support me and allow me to be there for them as well.  I am able to put food on the table, a roof over the heads of my loved ones, and live in a country where I can profess all that I believe and all that I am without fear of reprisal.  Today was a day for me to take stock of all the blessings in my life and to realize that those blessings are the product of my trust in God.

 

I pray that if you choose to count your blessings that yours are as plentiful as are mine, even more so.  Like Thomas Merton, I will continue to desire to please God and the people He has placed in my life.  I know that I will fall short and make mistakes as I journey.  Catie taught me that falling down did not have to define who I am.  She showed me that choosing to get back up, accepting the help of others, asking God to show the way, and doing it all with quiet grace and a smile is the key.  Catie lived life the right way.  I still miss her every day.  I miss her less when I allow her to be my example.

 

May God bless you and the work of your hands,

Christine, Kevin, Maggie, Max, Mia, Molly, and M.E.

 


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