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Catie's Story

 
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A Year Gone By

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We continue to prepare to celebrate our first year without Catie in our lives.  It doesn’t even sound right – how can anyone celebrate a year without someone, unless it was someone they didn’t love and want in their lives; but then why celebrate that? The what, how and whys of this celebration only seem to make sense to me when we look at the - WHO we are celebrating.  We are celebrating Catie.  What are we celebrating?  In a small way, we are celebrating that we have not only survived but in many ways thrived throughout this past year. 

There were so many days immediately after Catie’s death that joining her in death seemed like a good idea but not for the right reasons.  God has a plan for each of our lives and only He decides when it is time.  Until He decides our time is up, it is up to us to live our lives to the fullest and for Him.  We each hold our own personal memories of Catie; something we did with just her.  Many nights either Mia or Maggie shared a room with Catie.  What did they talk about before they went to sleep; they each hold those memories in their hearts.  Catie and Max often played together outside riding their bikes or jumping with their scooters.  Each child had one week of their own with Catie down at St. Jude and those are special memories and there are special photos for each of them.  We remember the little moments with Catie – her birth and the seven birthdays that we were blessed to celebrate, listening to her voice as she sang wherever she was, witnessing Catie learn and teach her younger sisters what she had learned and  being privileged to hear her prayers for those she loved. 

With all of these wonderful memories of Catie we miss her and long to be with her but that is only part of Catie’s story.  The other part of Catie’s story was the pain and the waiting in the hospital, watching Catie finally sleep again after days and nights of pain, seeing her strength, listening to the change in her prayers as she asked God to heal her and bring her home (we never asked but always assumed that she meant to our home, but will never know) and knowing how much she protected us from because she loved us.  In death Catie was healed of all of this.  Catie can now walk; Catie can now see; what a vision Heaven must be!  Catie can sing with all the angels – they better know the words.  Almost one year later we know that Catie is with us all still.  We have felt her presence.  We have heard how so many of your prayers to her have been answered – thank you for sharing them with us and taking them to her.  Has it been easy? No. Is it over? It isn’t meant to end because Catie has reached Heaven and she lives on with God forever in eternity.   So where are we?

As a couple we are reunited.  We have been renewed and strengthened.  Ask either of us and we both would say that we are more in love and love the other more now than we ever thought possible.  We both have tremendous respect for what the other was able to do to hold their part of our family together during the six months apart.  We have grown spiritually closer to God as a couple and thank Him for the blessing and gift of the other and our marriage.  That is not to say that we do not fight or continue to grieve – we do.  We are not perfect yet.

As a family was are all back under one roof.  We have been tested and we all realize that this model works best for us – all of us and each of us.  We spend more time doing things all together.  We spend more time hugging and holding each other.  We spend more time telling each other that we love each other.  We also spend more time praying for one another.  We still are not perfect.  The kids still do the crazy things that kids do that drive us crazy as parents.  We do our best to love them, guide them, forgive them and move on and each day still has its challenges.  Here we are not perfect either but we as a family remain prayerful.

The Fab 5 are well.  They all did well in school and that is always a comfort to parents.  They each have struggled and communicated what they have felt and continue to do so openly.  In the past few days both of the younger girls have been playing on their own and with their dolls.  They discuss cancer, tumors, wheelchairs, death and what happens after death.  They each have concluded that while God is there and has a plan – something we are certain they have heard us say – “He keeps it a secret so it must be a REALLY GOOD plan.” The awesome faith of a child!!!

We will be attending Mass at St. Columbkill in Boyertown, PA on Sunday, January24th at 10:30am and then we as a family will drive to Calvary Cemetery and visit Catie’s grave.  The kids want to bring something purple.  So we will be bringing purple flower petals and Holy Water.  On Monday we will be attending Mass for Catie at 9am at St. Joseph’s in Mechanicsburg, PA.  There is no book on how to handle this day, no guide, no right or wrong and yet it is a day when in many ways our lives changed forever and our faith and belief in God was tested.  What we are celebrating is that this beautiful child was given to us – not just our family – but all of us and after seven short years we witnessed her death.  We still long to hold her; to have a physical connection with her and yet it is only through our faith in Christ’s Resurrection that Catie exists outside of our memories.

Today at Mass, Father Brommer spoke about the Ark of the Covenant – what it contained, why it was important and where it was located.  Never knowing what it contained it was an interesting homily.  The ARK contained the original Ten Commandments (2 stone tablets), Aaron’s staff and manna.  Until Christ came it held the only tangible gifts from the hand of God to His people.  Now through the life, death and resurrection of Christ we no longer need to hold on to the Ark; as Christ gives us His body and blood every day at every Mass that is celebrated.  If we hold in our beliefs that Christ conquered death in His Resurrection then through our baptism and life in Christ we too do not die but live on in eternity with God. 

What then shall we say?  Shall we persist in sin that grace may abound? Of course not!  How can we who died to sin yet live in it?  Or are you unaware that we who were baptized into Jesus Christ were baptized into his death?  We were indeed buried with him through baptism into death, so that, just as Christ was raised from the dead by the glory of the Father, we too might live in newness of life.

For if we have grown into union with him through a death like his, we shall also be united with him in the resurrection.  We know that our old self was crucified with him, so that our sinful body might be done away with, that we might no longer be in slavery to sin.  For a dead person has been absolved from sin.  If, then, we have died with Christ, we believe that we shall also live with him.   We know that Christ, raised from the dead, dies no more; death no longer has power over him.  As to his death, he died to sin once and for all; as to his life, he lives for God.  Consequently, you too must think yourselves as [being] dead to sin and living for God in Christ Jesus.

(Roman 6: 1-11)

 

How can you join us?  Join us for either of the Masses or join us in prayer from wherever you are.  Pray for all those who do not have the support that you provide us with each day.  Pray for the children that Catie’s wished to take care of; those fighting for their lives at St. Jude and other Children Hospitals around the world.  Pray for the families who have lost a child and are still actively grieving that they may find comfort.  Pray for the doctors, nurses, staff and researchers who sacrifice so much of their lives to care for critically ill children.  Pray for yourself and your family that you remain faithful to God and His divine will for your lives.

God is good all the time,

Christine, Kevin, Maggie, Max, Mia, Molly, M.E., and always Catie

PS -  Please continue to pray for all of our dear friends from St. Jude - the doctors, nurses and staff that support the patients and families.  Please pray for all who have asked for our prayers and please add to your prayers Baby Amelia, Baby Coco, Connor, Parker, and Oliver, all who are new to our prayer list and in need of our prayers. 

 

 

Light Shows

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Just a quick update to let you know that if you are in the area and have not yet seen the area light shows benefiting Catie’s Wish and St. Jude that you still have this weekend to check them out. They are spectacular! We drove around to the Krasleys’ and the Narel’s tonight and are planning on going to visit the Boucher’s tomorrow night, and of course, we started it all with the Duszak’s and their wonderfully inspiring show. We had a chance to meet the people responsible for the shows at the Krasley’s and Narel’s and spent some time with them thanking them and talking about Catie. It is well worth the drive!

The link to the website is http://duszakfamilylights.com/tour_of_lights.html and the directions are on the site.

Here are the addresses for the 4 shows:

Duszak Family Light Show

205 east Clearview Drive, Camp Hill, PA

Krasley’s Country Christmas

525 Woodland Drive, Manheim, PA

Narel Family Lights

1300 King Arthur Drive, Mechanicsburg, PA

Boucher Lights

35 Dakota Drive, Hanover, PA

Thank you to each of the families who set up the show and the tour and a special thanks to Ron and Jolene Duszak for the impetus to start the tour. What a fitting tribute to Catie and to Ron’s mom!

God is good, all the time.

Christine, Kevin, Maggie, Max, Mia, Molly, M.E. and always Catie

PS – please pray for the kids still battling and for Mia and her classmates as they receive the Sacrament of Reconciliation for the first time Saturday morning.

Some really good news, thanks to your prayers, Jack and Mikey received test results from their scans showing great improvements !

 

Looking Back

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Looking Back

 

Less than one month after Catie’s death we received a note from a follower of Catie’s story.  This note was not added to the public guestbook but rather sent privately to us.  It simply read,  spend time with your family and stop wasting your time (it may have said spending your time – but that is not how it felt when we read it) writing updates.  It was a note amidst the thousands – it seemed negative and like a slap to move on – and yet it stood out then and does now.  Writing to all of you – just writing in general has allowed us to clarify what is happening; to see not only the real measurable events of each day but also our thoughts and impressions.  You the reader share our journey.  It is our hope that this sharing will lead you all to pray – for us, for yourselves and for those we ask you to pray for in the P.S.

Each morning when the computer is turned on the updates are waiting – when you are following the stories of pediatric cancer you always have mail.  Some of these stories tell of the child’s appointments, schedule, status and progress towards CANCER FREE or END OF TREATMENT.  How Catie loved the St. Jude song “You don’t need chemo any more”!  Even though Catie knew she was dying she still asked her nurses to sing it to her the last day at St. Jude – how she beamed!   Other stories share the struggle, the pain and worry and still others share the faith and belief that God holds the answer and the cure.  Throughout the past eighteen months we have shared all of the same with you – always trying to end on a positive note and asking and trusting in your prayers.  Today is no different.

It is almost unbelievable that later this month – or in three weeks time – we will be celebrating one year since Catie’s – here is the first stumble… is death the right word? Yes, Catie did die.  Or was it Catie’s birth to eternal life?  Yes, that is what we believe; that Catie now lives eternally with God in heaven.  Left us – could be used?  She is not here and yet she is and we will always seek to feel her presence and sense an awareness of her being with us.  Considering the importance of not only the word choice but also the day itself, we will be celebrating the one year anniversary of Catie’s life and death.  In the world of Catholic Saint’s, Feast days are often celebrated on the day that the saint died.  As it was one of Catie’s desires to be the Patroness of Pediatric Illnesses, we honor that desire through a celebration.  What will we do?  We will set this date – January 25th apart and like Christmas and other Holy Days we will spend it with an awareness of why it is special.  We will have Mass said for Catie and we will attend.  Preparing for this day is odd – there is no right or wrong and there is very little in the way of tradition.  It has been our feeling that being true to Catie may be the best way to celebrate the day.  It can be as simple as being there for one another.

How did we get here?  How did we move through 2009?  There are no memories of New Year’s Eve 2008 or of New Year’s Day 2009.  Remembering is one thing; being reminded is often something different.  Going back to the Catie’s Story website and reading last New Year’s Eve - may not have been the best way to remember.  It was day 37.  How is it that you are given a number of days less than 100 to be with your child?  To prepare them for heaven?  To prepare yourself?  To prepare your other children?  How is it that no matter how many times we are told to slow down and treasure the moments in life we add more to each day?  Why is it that the most significant moments in life will occur without us realizing it until it is over?  Even with the perspective that Catie’s life and death offered us we are still guilty of this – though less so than before.

This past year we said good-bye to Konley, Catie, Hunter, Hannah, MaryKate, Liam, Mary, Alex, Clay, Reagan, Elizabeth Grace, Christian, Sydney, Breanna, and Dax and there were others.  Which each child we prayed for a miracle – we asked for Catie’s intercession and we still said good-bye.  We were disappointed each time.  Still we continued to pray.  Each day someone relapsed – today we are praying for Jack, Gavin and others.  Each day someone was added to the list of children on hospice – today we are praying for Dylan, James and Mattie and there are others.  Each day someone was added to the list of children who have cancer, today we are praying for Campbell, Kaiden and there are others .  This was and is overwhelming.  Why did and do we continue to follow these stories?  Many of the children Catie didn’t even know, we have not met them or their families and many of them are not treated at St. Jude.  Why?  In the midst of all the suffering and the entire struggle is the beauty and the resilience of the human spirit and power of prayer.

There are families for whom life has returned to normal or “normal after treatment”.  Families that are back home and living and enjoying life – Abby, Amber, Brayden, Ellie, Hunter, Jonah, Jill, Marit, Molly, Neve, Sean, and Trevor and there are others.  We need to offer prayers of Thankgiving for these victories!!  There are families who celebrated this Christmas with each other – cancer free like Mom-Mom who the doctors can’t explain the cure.  Thank you God.  There are stories that we are blessed to share and gifts that Catie’s Story gives to others and will continue to give as long as we have the strength to share it.  Someone once asked if we wanted to shelter the children from anymore of the pain and suffering?  Our answer was simple; if we hid the children from the pain and suffering then the stories of triumph and glory are taken away too.  We are a Christian people – we live in joyful hope for the future.  Christ told us He was coming back.  This world is ours.  We can spend time amassing that which we will never use or enjoy or we can spend time making a difference in the lives of others.  Through all that we experienced through our journey with Catie and now through her legacy, making a difference or at least trying to make a difference is our choice.  There is much to be done. Your prayers saw us through the eight months of Catie’s disease and your prayers have seen us through the past year.  Please continue to join us in prayer for our healing and for the many families who are still battling this disease.  There is a cure out there – through prayer and research it will be found.   Prayer reminds all of us that although there is much to be done we are not alone.  God is with us.

Thank you for all of your prayers.  Kevin had ten days off over the Christmas holiday and we spent them together at home – for the most part.  They were wonderful days filled with love and laughter and the joy that comes from being together.  We are so very grateful for each other and thankful to be together.  We all still miss Catie each and every day and desire that she be with us.  That is not going to change but through God’s grace that desire will lead us to acceptance and peace.

 

May God bless you and the work of your hands,

Christine, Kevin, Maggie, Max, Mia, Molly, M.E., and always Catie

 

PS Please continue to pray for all of our dear friends from St. Jude - the doctors, nurses and staff that support the patients and families.  Please pray for all who have asked for our prayers and please add to your prayers Baby Jack, Danny, Erik and Zach all who are new to our prayer list and in need of our prayers. 

 

Merry Christmas

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Merry Christmas to all of Catie’s followers,

 

     As I sat in church this morning the memories of last Christmas Eve came flooding back.  Last year at this time we were putting the finishing touches on packing 8 people including one in a wheelchair and scrambling to get to the airport so that we could make our way to South Carolina for my dad’s 80th birthday.  I can remember Catie calling poppy and asking, “can we come and celebrate your birthday because I am not going to be here for mine?’  She was right, however what we were able to experience in the last 31 days of Catie’s life is a testament to your love, support and prayers as well as God’s amazing grace.  A year ago today began the odyssey of Catie’s 2 First Communions on the 25th and 28th with a wonderfully exciting 5am arrival home on the morning of the 28th after a 7 hour drive through the fog when our flight home was cancelled.  I can remember that night in the airport as Catie looked at Christine and me and asked us to please not cancel the Communion and party and our immediate decision to do whatever Catie asked of us.  We all say “no” to our kids and most times there are compelling reasons for our negative response.  As I look back on Catie’s last month, what I remember most are the times when we said “yes” to her and how thankful I am that we did.  I also realize what a blessing it is to be Christine’s husband and to be on the same page in our parenting. 

 

     A dear friend met us at church this morning and the kids all hugged and squeezed him as they always do and I again thought back to last Christmas Eve when as we were walking to communion he asked if he could carry Catie.  I was pleasantly surprised when Catie said yes to him and allowed him to carry her, it was not a privilege Catie extended to anyone except Christine and myself, (and sometimes not even me).  As he approached the altar he asked the priest to bless Catie and at first, the priest refused, it is just not something he normally does.  Dom, Catie, and the Holy Spirit prevailed however and Father extended his hands and blessed her, preparing her for her journey and for her First Communion the next day.  Today, I know that Catie was in that church with our family, with Dom, and with that same priest and extended a blessing to all of us to prepare us for whatever comes our way today. 

 

     This afternoon, we will go to mass again and celebrate with our parish family at St. Joseph’s the birth of Jesus.  Mia and Maggie will be in the choir loft singing their hearts out and I will again be blessed to be holding the hand of the woman that I was created to love.  We will remember poppy and hope that his birthday is all that he could hope it to be, we will remember Catie and hope to be open enough to feel her presence, and we will remember that over 2000 years ago a child was born to a loving and selfless couple who simply and consistently said yes to God’s plan for their lives.  Whatever your faith, the Christmas story is both timeless and compelling.  It is a story of choices and that is why it resonates in all of us because our lives are all about choices as well.  When God blessed us with free will, He allowed us to have a hand in determining not only what our life would be like here on earth, but where and how we would spend eternity.  That same free will that we possess was shared by Mary, Joseph, and Jesus.  Mary could have said no to Gabriel and God instead of yes, Joseph could have said no as well.  And what about Jesus?  Can you imagine when God laid out the plan to Jesus; 1.leave heaven and go to earth as a single cell.  2.grow inside Mary’s womb for 9 months and then be born in a stable.  3.leave home in the middle of the night and flee to a foreign land and live in hiding.  4.return home years later and grow up as the only boy your age because all of the other boys were slaughtered.  5.become a carpenter like your father.  6.become an itinerant preacher who is so beloved by the crowds that they want to make you a king.  7.become such a threat to the establishment that you are tortured and killed  8.watch almost all of those that you shepherded abandon you.  Who could have blamed Jesus if He said “no, I think I’ll just stay here in heaven.”  Thank God that He made the choice that He did.  That is what I will be celebrating beginning this afternoon.  This Christmas, I will be concentrating to hear all of the little messages of choices where people said yes to God and His plan.  Hopefully the more I hear the more I will be able to follow their example and do the same in my life.

 

     That is also what Catie taught me in her last month, consistently responding affirmatively to God’s will.  My father taught me that as well and I am proud to be his son.  For 81 years, he has been an example of acceptance.  I have never known him to worry, I am sure he believes that God has cared for him for 81 years and has a good track record, no reason to start second guessing God now.  For me, trusting in God’s plan is easy at times and downright impossible at others; but again, it is a choice.  My prayer for all of us this year is that Christmas sparks a renewal of absolute trust and surrender to God’s plan for our lives.  May this Christmas season be filled with countless blessings and numberless opportunities to say yes to God and yes to one another. 

 

May you have a wonderful, blessed Christmas and if you are traveling, please travel safely,

 

Christine, Kevin, Maggie, Max, Mia, Molly, M.E., and always Catie

 

 


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