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Recent updates | Catie's Story

Catie's Story

 
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Mario Lemieux

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Catie Team Followers,

     Catie and Catie's Wish has been selected as one of the 3 most inspirational stories about personal journeys with cancer.  Please click on the link below to see Catie's video and the other finalists.  This is a battle that we will continue to fight on Catie's behalf and with your support.  Thank you for continuing to journey with us.

http://www.youtube.com/user/MarioLemieuxFDN

God bless you,

Christine, Kevin, Maggie, Max, Mia, Molly, M.E., and always Catie

 

 

How love changes your life

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We are making our way through all the prep for Christmas.  Buying and thinking of gifts is really no different.  Making lists and hurrying about - rushing and feeling the need to rush - running out of time to get everything done  - none of those are a part of this Christmas.  Instead there is a peaceful calm amidst our heartache.  Remembering Catie and missing her is where we are.

 

Thinking about Catie in some ways makes it feel more like Christmas.  Catie and taking care of Catie brought us so close together as a couple and as a family.  It has been said that children are the glue of a marriage.   In our case Catie and her cancer became the cement.  Anytime we attempt to move forward without Catie, without prayer, without God - we as a family or Kevin and I as a couple feel the crack.

 

At this same time the Fab 5 are a delight.  I have never been so thankful for them.  M.E. at three has developed her own language.  When a shirt is in my mind, “inside out”, M.E. calls it “outside in” and asks me to make her shirt “outside out”.  I relish observing and sharing her life and am so very thankful to Kevin and God that I have the privilege to stay at home.  This is a decision that we made years ago before kids – did God know then that we would only have 7 years, 9 months and 2 days with Catie?  Yes, He knew as He knows all things.  I am so thankful that I accepted Kevin’s gift and was blessed with the extra time with Catie before she went to school.  I am also and will always remain so thankful to all who supported us making it possible for us to seek treatment in Memphis at St. Jude.  I spent four months with Catie and while I can’t recall every moment I know that each of moment was a blessing. 

 

All children are a blessing.  Spending time with the kids and witnessing all the wonders they discover in their world is a miracle that occurs every day.  It is a gift from God and blessed are all those given that gift.  I could watch the Fab 5 and listen to them (when they are interacting with each other playfully) forever.  I pray I will be blessed with this reality.

 

This is a prayer I first prayed twelve years ago “Dear God, please allow me to witness this child grow up to know you and love you and serve you in others.”  Then I was pregnant with our first child.  It was not an easy pregnancy but never having been pregnant before what did I know.  When I was told just before midnight on December 16th that I was going to have child before morning I prayed like all mothers for a healthy baby – whether the baby was a boy or a girl did not matter only that the baby was healthy and that I would live to witness the life of that child.

 

Maggie was healthy.  Our first child was a healthy brave blessing and that is exactly who Maggie is today.  Maggie has an understanding of God and her faith in Him that I have never experienced before in a child.  While I prayed and was concerned about Maggie due to her small size (birth weight 4.14) Maggie reached her hand out to me to grasp my finger as I looked at her in her incubator.  At the time I was unsure how my life was going to change I simply knew that it would.

 

After each child my life changed a little less.  Now it has changed as radically as it did after Maggie’s birth.  Being pregnant, all us pray for a healthy baby – that makes sense; that is what we all want; to love and raise a health “normal” baby, we pray this not just for ourselves but also for anyone we know who is pregnant.  Just like when we get married we take all our vows – in sickness and in health, for richer or for poorer, in good times and in bad – again we all pray “between you and me God good, healthy, rich times, right?”

 

What happened to us when Catie became sick is what changed our lives.  We had this amazing beautiful healthy strong intelligent girl.  She was so gifted.  She could sing like a bird.  She was musically talented.  She could mimic anything you taught her – a dance, a song, a movie line – on the first or second try.  She was athletic – competing with her older brother Max when she was two years younger and she never backed down.  She was happy and loved life and people.  Put all of this together and you are just scratching the surface of who Catie was and we love her for this and countless other reasons.

 

I loved two things about her the most – listening to her sing in the back of the car and watching her.  I loved the way her eyes squinted when she smiled.  I loved that way she always wore her hair in braids.  I loved the way she was so confident and sure of herself and you could tell this by looking at her.  I loved her smile.  I loved her because of who she was and because of how I felt being with her and I still do and I always will.

 

All this love that I have for Catie still exists.  I still love her.  When she became sick what changed was me.  I became totally willing to keep on loving Catie even though she was no longer healthy.  I would have carried her for the rest of my life.  I would have read to her and bathed her and fought alongside of her forever.  Loving Catie and caring for Catie became who I was and it became who we all were once Catie came home.  Everyone helped take care of Catie and everyone loved it and Catie once again accepted it.  Catie did enjoy being in charge and teaching the kids all about her central line.  She loved telling them about how things were done and about the medicines that she was taking.  She allowed them to be a part of everything.  While she was busy accepting that she would no longer walk, run, jump or ride a bike we were growing in our willingness to take care of her and be Catie’s legs, feet, balance and strength.

 

I always knew that people were more than their physical bodies and told this to Catie dozens of times at St. Jude – where we saw many children without limbs, without “normal” walks, with scars and with lines coming out of and into many places in their bodies.  We are all more than our bodies.  Collectively we are all Christ.  Individually each day we are offered at least one opportunity to use our bodies to be Christ for someone else.  Each day we are offered the opportunity to allow someone else to be Christ for us.  Catie taught us this and forever changed how we view our bodies.  We watched her to accept her body failing without complaint and we understood surrender from Catie’s example. 

 

Catie loved us all so very much that she would have stayed here on earth to allow us to take care of her.  We learned that we had to let her go and serve others who may need us just as much as she did; isn’t that just what Christ challenged us all to do for one another?  We have learned through our grief that the tears keeping falling and the sadness remains with us unless we are reaching out and helping others.  Each day that is what we pray we will do.  Each day we are thankful for Catie, her life and her example.  We will still miss her and long to be with her again but reaching out to others bridges that gap between heaven and earth better than anything else we have found.

 

Happy 12th Birthday Maggie!  We love you and are so blessed to be your parents.

 

May the peace of Christ be within your heart today and always,

 

Christine, Kevin, Maggie, Max, Mia, Molly, M.E. and always Catie

 

PS  Please continue to pray for those that have asked for our prayers.  For the children who are sick and recovering:  Abby, Alex, Anne Marie, Brayden, Campbell Charles, Charlotte, Cody, Cole, Dan, Dax, Dylan, Ellie, Gavin,George, Hunter, Jack and another Jack, James, Jonah, Joseph, Kaiden, Kate and another Kate, Kathleen, Kendra, Marit, Mickey, Molly, Neve, Nicole, Richard, Sean, Sheldon, Stacey,  Theresa, Trevor, Tala, and William.  Please also pray for all the families who long to be reunited with their children and other family members.

 

Coping

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Dear Catie Followers,

My prayer for all of you is that Thanksgiving offered you a moment to spend in prayer, thankful for all of your blessings.  We had discussed writing an update over the weekend and yet there never seemed to be the right time to sit at the computer – until now.  This Thanksgiving was stuffed – perhaps more so than the turkey.  We could not decide how or with whom to spend the four and half days that we were blessed with until almost the very last moment.  Every plan that was made was carried out and we all enjoyed ourselves. 

On Wednesday the kids had a half day and so did Kevin.  Wednesday night began with Mass – soon after Catie’s death we began attending Mass on Wednesday night at St. Katharine Drexel.  At each Mass our intentions are for the success of the Catie’s Wish Foundation – the mission statement is to eradicate pediatric cancer through prayer and research – so we prayer together as a family for this.  Please know that we would welcome anyone or any family that would like to join us.  Afterwards we went home and worked on some things for Catie’s Wish.  No baking and no cooking.  This type of day before a holiday is atypical for us.  No preparations of any kind were done for this Thanksgiving.  We are not quite ready to prepare we are all just coping.

Thanksgiving Day began with Mass at St. Joe’s followed by a drive to NJ.  Before arriving at my mom’s for dinner we stopped by the graves of Grandma Gladys and Uncle Ron.  This year marked the 28th anniversary of the death of Kevin’s mother.  Our visit was a solemn one and after our Hail Mary and hello to Uncle Ron, we continued over the river and through the woods.  We enjoyed a Thanksgiving meal with my parents and four of my six siblings.  Was it hard?  How did we feel?  It was like driving in fog.  You are there.  You see everyone; hear everyone and you can even speak.  You just aren’t all there and so nothing is clear and there are moments of clarity and moments of almost nothing.  You are so aware that Catie is missing – physically missing.  Each picture you see holds a memory of a past holiday with Catie and you miss her even more.  Even the little girls Molly and M.E. show signs that they are aware of Catie’s absence.  M.E. begins to make more phone calls to heaven asking Jesus “Please let Catie come down today.  OK?” Molly plays make believe and in her play there is a character that came after Catie’s death and stayed for a few months and left, this character returns for a day when one of the children we know dies and returned this weekend.  Molly simply refers to this character as the “dead kid” – at first, this was shocking and upsetting to me but it is all a part of how Molly is coping.

 I realized during this weekend how blessed we are – not the losing Catie part (but don’t rule that out Catie’s Story is not over “for nothing is impossible for God” Luke 1:37) – but to have so many offers to join others in their Thanksgiving celebrations.  My mom may not know what to say – I don’t know what to say to Kevin, how should anyone know what to say to us? – but she spoke her words of love for us through her invitation to dinner.  Her words were simple “join us we would love to see you and be with you.” We are not the only ones coping; all of our friends and relatives and those who loved Catie are all coping and most of you don’t get as much support as we do and for that reason I have begun to pray for all of you as you go through these holidays and remember last year.

I have read recently about how each member of a family navigates through the grieving process at their own pace.  From our experiences I would completely agree.  I realize that the Fab 5 will be dealing with all that they have experienced for the rest of their lives.  Kevin and I will as well, but it will be so very different – our perspective is not going to change as much as the perspectives will change for the Fab 5.  There is no way to prepare for this – there is just coping.  If you google coping; coping is the process of managing taxing circumstances, expending effort to solve personal and interpersonal problems, and seeking to master, minimize, reduce or tolerate stress or conflict. That about sums up every life that has been touched by cancer and/or death; so what do you do?  You live your life one moment at a time.  You don’t over schedule yourself.  You give to yourself and to those you love as much carefree timelessness together as you can.  Every minute will pass whether you notice it or not, whether it is scheduled or not and only you will lose out if you missed something because you were too busy doing something that was less important.  We are not the only family that is facing a first this Thanksgiving; many are facing their first Thanksgiving – in a new home, with someone away, with someone sick, with someone unable or unwilling to travel, with a new member of the family – and like us they are coping.

As this was our first holiday at home (Easter we were in South Carolina) we thought we should visit Catie’s gravesite.  So the plan was to head out Saturday morning and go to see Catie and visit with some friends.   I had spent a lot of time catching up with my family and Kevin’s family and our friends on Thursday and Friday and Kevin had spent his time watching and playing football with the kids.  I had noticed that he was growing quiet and quieter.  I am still trying to figure out how to help Kevin deal with the loss of Catie.  When he is sad I feel I can’t reach him and therefore can’t help him. What is left to do for him?  Kevin is the love of my life and I would do anything and yet I have discovered, through this process, that what he needs or wants me to do is more difficult than bringing Catie home for good was for me.   I have also found that trying to reach him doesn’t bring about the results that I am after.  I want to DO SOMETHING and yet what Kevin needs me to do is simply BE THERE for him.  To do that means holding his hand, sitting and being with Kevin while he is sad and hurt and that is incredibly painful for me.  To give him time to just work through what he is feeling and do nothing – couldn’t I make you a sandwich? Or tell you how much Catie loved you – that should bring on the tears? Or how about we clean or straighten something?  No!  Those might work for me but they don’t work for Kevin.  Lately I can see where Kevin is and how he is feeling before I can tell where I am or how I am feeling.

Well the fact that I saw Kevin so sad on both Thursday and Friday started Saturday  with this realization that this was indeed a difficult first and then came the tears, misery and self-pity.  This is not very effective either.  Self pity is not pretty or positive thus the word pity.  Throughout all of my misery I continue thinking how are we supposed to go on without Catie?  How are we supposed to celebrate when I feel like dying?  How are we supposed to stand and smile at someone who says such hurtful things all because they feel the need to say something?  No one needs to be reminded that this was hard!!  No one needs to be told one holiday down and only Christmas and New Years to go!!  Are you crazy?  Does it get easier??  Is it just the firsts??  Stop talking about or telling me about all the firsts and how hard they are!!  Is it only going to be hard when Maggie gets married, if she is first and then it will be smooth sailing for the rest?  Catie will miss it all or will be there for it all and how much depends more on our level of faith than in the number of firsts that we have checked off a random list. 

According to all the so called experts in the field of grieving and the books that I have read about grieving and the associated stages there has never been a mention of telling off someone to their face because they are upsetting you – not that the books suggest that you should politely listen and smile but come on people.  Imagine that your child died and then imagine someone is going to say something to you….what did they say??  Nothing.  They said nothing they were just there – being there.  Maybe the only reason it gets easier after the first years is because loving, caring folks stop saying stupid things in an attempt to comfort you.  My advice is close your mouth and pray.   Is this easy?  No way.  It is so difficult to do that I can barely do this for Kevin and he is my husband.  Realizing that that is want I would have preferred over some of the comments that I dreaded hearing my sadness increased before it finally left me.  So Saturday I stayed in bed crying for hours.  Grieving and sadness is like a violent storm – it comes and goes without warning.  The tears finally stopped, we packed and took our seats in the car.  I knew that I could tell our friends we were not coming but something in me really wanted to go see Catie.

Visiting Catie’s gravesite was unlike visiting Grandma Gladys’s gravesite.  It has nothing to do with the cemetery rules.  It has everything to do with the relationship between Catie and the kids, especially the three youngest girls.  They dance and they sing.  They climb on the tombstones – yes even other people’s tombstones.  If we would let them they would play hide and seek.  They are joyous even in their voices while we pray you can hear their joy.  Kevin and I are not so joyous but we are filled with peace because of their joy.  Visiting Catie’s grave doesn’t bring her back.  It doesn’t take some of the missing away or do anything that I am not aware of consciously.  I do not visit Catie as a sense of obligation.  Visiting Catie is just a part of my coping.  She is there and she is not there.  I sometimes do not even think about my other relatives who are buried alongside of Catie.  There is my grandfather, GP and my grandmother, Mom-Mom and their son, Billy.  There is my great grandfather and my great grandmother (she died when I was one) and there is my Great Aunt Peg.  I noticed that her name read Margaret B. Flanagan.  Wondering if the B. stood for Bernadette I called my mother after we left the cemetery.  Mom could not speak because she was at the ER with my dad who was having terrible pain.  So instead of going home we headed back to NJ.

Having spent months sitting alone in a hospital waiting for tests and the results I knew what my parents were going through and I didn’t want them to be alone.  When Kevin suggested going to the hospital at first I thought he was crazy and then he said it is what we do – be there for those that we love.  We arrived at the hospital in time to get the test results – kidney stones.  Before we left the ER we had a brief visit with Beth, Kevin’s sister, who we had missed over Thanksgiving.  (Beth works in the ER at the hospital.)  We ate dinner with my parents and once dad was settled we returned home.  Thankfully the kids had Monday off and we all slept in – except Kevin.

As I awoke on Monday morning I could not tell how I was feeling.  I should have been absolutely exhausted – with three different trips to NJ in four days.   Part of me wanted to begin Advent.  Part of me wanted to skip to summer.  Part of me wanted to do whatever would make everyone else happy.  What did I do?  I prayed; when in doubt let God work it out.  By the end of Monday I knew exactly how I felt – so blessed, loved and thankful.  The kids and I spent the day preparing just one thing for Kevin to come home to one this first Monday of Advent.  We took everything off the mantle including the painting and put up what Max calls Christmas past (photos from every Christmas including Maggie at one week old and 4 pounds).   I have been waiting since 1995 to do what I did yesterday.  Before we were married I picked out two cross stitch stockings, one for Kevin and one for me.  My sister, Colleen was going to cross stitch them for me.  When Maggie was born a dear friend cross stitched a stocking for Maggie.  Then I figured that we would all need stockings that were similar and my mom willingly stitched all of them, except M.E.’s which was stitched by my dear friend and M.E.’s godmother, Franka.  Molly’s stitching was finished this summer and Kevin’s stitching was finished last year but both needed to be sewn into stockings.  Once the sewing was done and each of the kids hung their stocking I arranged the photos on the mantle.  I took last year’s photo from our Christmas card and enlarged it to 24” x 36” and hung it over the mantle.  Everything was in place and ready when Kevin arrived home.  When I look at the photos and the eight Christmases that we had with Catie I feel blessed and I am.

When Kevin arrived home he felt the same way.  We all love looking at all the stockings hanging by the chimney with care.  I know all the love and prayers prayed behind every stitch – prayers for the kids and our family.  I waited for 14 years to see all the stockings completed for my family – it took some time but it was worth the wait. If I continue to trust God and believe in His will and do my best to serve Him I have faith that heaven will also be worth the wait.  Monday went great because we all were there for one another.  We all prayed together, shared with each other and spent time not being so busy trying to get everything done.   We rather enjoyed doing what we did and knew at the end of the day that nothing was more important than loving one another and being there for each other.  Tucking kids into bed the last words that are said are usually “I love you” why not say it with your actions.  Spend time with your children doing the simple things in life like reading (1 chapter not the entire book), baking cookies (1 batch not ten) and preparing for Christ’s coming.  It is what the kids will remember and their smiles are what you will cherish.  Trust me.

 

May you spend time this season of Advent preparing your heart to receive the greatest gift you will ever receive – Christ’s love for you.

Christine, Kevin, Maggie, Max, Mia, Molly, M.E. and always Catie

PS  Please pray for Barbara B. and Barbara K., Cole, Dad, Dax and his family, Jack, James, Joshua and Little George.

PPS – If you have not been on the website in a while, please log on to www.catiesstory.com and see the new photos we have added recently.

 

 

Time to Reflect

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Greetings Catie followers,

 

It is our sincere hope and prayer that this finds you well and in the warm embrace of God.  This past weekend, St. Jude sponsored 39 Give Thanks Walks across the country as a kick-off to their annual Thanks and Giving campaign.  One of the events was in Harrisburg and the Catie’s Wish Foundation co-hosted the event.  By all accounts it was a tremendous success.  Over 250 people gathered to show their support not only for St. Jude, but also for Catie.  Every event brings us that much closer to fulfilling the mission that Catie left for us, to eradicate pediatric cancer through prayer and research, and this event was no exception.  We were blessed to see both long time Catie supporters from near and far as well as new faces that met us at the event and have offered their continuing support.  It is still humbling to reflect on our blessings; thank you.

 

The walk also marked a year since the first Catie walk held in Mechanicsburg last year.  What a difference a year makes.  Last year’s event was kicked off by Catie as she had recorded a short video thanking the participants and then saying, “On your marks, get set, GO!!”  Last year at the walk we were still so filled with hope as Catie had completed her radiation and 2 rounds of chemo.  Last year, the fab 5 and I were preparing to fly down to Memphis to join Catie and Christine and 15 family members for Thanksgiving.  November 23, 2008 changed all of that.  Last year on this day, we learned that the tumor was back.  Last year on this day, we first listened to doctors as they explained that nothing more could be done and then had to hold Catie in our arms and tell her that she was going to die.  All of the hope disintegrated in the split second it took Catie to process the information and look into my tear-filled eyes and ask me, “why daddy?”  It remains the most difficult moment I have ever had as a human being, and the most vulnerable moment that Catie ever allowed herself to have.  Within an hour after receiving the news, that wonderful, beautiful, amazing little girl was holding M.E. on her lap in the wheelchair and was explaining that the tumor was back, but that she would always be M.E.’s big sister.

 

We spent the week doing our best to celebrate as a family and enjoy the time we all had together.  Then the fab 5 and I went home for a week before Christine and Catie came home for good.  We had wanted them home, but not this soon.  Once they arrived home, Christine set to work making our home as festive as possible for Catie’s last Christmas.  Next week, we will start to decorate and prepare for our first Christmas without Catie.  That thought has caused a melancholy to descend upon Christine and myself.  The first holiday season after losing a family member is always hard, and we will now see just how hard it will be without our sweet Catie.  As the weather has turned colder, Christine and I have started to remember how fervently we tried to keep Catie warm and how difficult it was.  Now the cold is exacerbated by Catie’s absence.  Thankfully God and Catie arrange a beautiful sunset many nights to keep our hearts ablaze.

 

The fab 5 are doing very well; school is an adventure and they are thriving in the wonderful St. Joseph’s environment.  Each of them smile infectiously every day and we are aware of the wonderful blessing of how well they are handling Catie’s absence.  Christine reads to Mia, Molly, and M.E. most nights and the Little House on the Prairie books have filled our home as they filled Catie’s hospital room last year.  I sit and listen and thank God for the blessings of being Christine’s husband and the kids’ father.     

 

May God bless you and the work of your hands,

 

Christine, Kevin, Maggie, Max, Mia, Molly, M.E., and always Catie

 

PS – Please pray a prayer of thanks for all those who organized, volunteered and walked for St. Jude's Give Thanks. Walk this year!  Also please pray for those who have asked for our prayers and the those in need of our prayers (Becky, Bill,Charlotte Rose, Dan, Darcy, Diana, Erik, Franco, Katherine, Loan's family, Mikey, Nick, Phyllis, Renee, Robert, Sean, Susan and Tara) and for all of those who care for the sick and dying.

 


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